06/03/2026
One of the reasons I talk so openly about living with cystic fibrosis is because I know how isolating it can feel when people only see the version of you that shows up.
They don't see the appointments on your calendar.
They don't see the treatments you fit into your day.
They don't see the calls, paperwork, medications, insurance approvals, setbacks, or all the small decisions that go into taking care of yourself.
And honestly, they're not supposed to.
But I do think it's important that people living with chronic illnesses know they're not the only ones carrying those things behind the scenes.
I've spent my entire life learning how to navigate healthcare, advocate for myself, and understand the coverage I need to stay healthy.
If sharing those experiences helps even one person feel less alone, ask better questions, or find coverage that truly supports their needs, then it's a conversation worth having.
You're carrying more than most people realize.
And if you're doing your best to show up anyway, that's something to be proud of.