09/15/2026
In 2 weeks, we will be making our way back to Philadelphia! Walker will be admitted to CHOP in attempt to transition off the TPN and move to 100% g-tube/oral feeds!
As excited as we are, the level of planning and flexibility this trip needs has been challenging to say the least. We have no idea how long Walker and Mandy will be in Philadelphia. It could be a couple weeks or it could be a couple months. But the one thing I know, is that God's got us.
Despite everything our family has been through these last few years with Walker's journey, we know we have been beyond blessed. We have witnessed the miracles firsthand. We have seen people from all over reach out with a helping hand. We have been given a community who continuously pours into our family. We would not be where we are without our community.
With all that we have been through, I set out on this career path to help other families like mine. If you or someone you know could benefit from a conversation on how to navigate through their journey, please let me know!