Jaygen's Journey

Jaygen's Journey Jaygen is my awesome Little Man.He has been thru alot, but He is a fighter for sure. NEVER EVER GIVE UP He has had issues since birth. Prayers are the best.

Cards or care packages can be sent to Jaygen Graham 3905 Schaad rd Knoxville,TN 37921 Jaygen loves getting mail :)
Amazon Wish List: http://smile.amazon.com/gp/registry/wishlist/2NQIYDTG8F8O4/ref=cm_wl_rlist_go_o? Jaygen was 34 weeks and his doctors say he developed like a 30weeker. Jaygen was born by emergency c-section because he broke my water and we didn't know it. He spent 22 days in the NICU

at East Tennessee Children's Hospital. Jaygen has CDG-Type 1A, Autism, Tourrettes syndrome, FTT, Celiac Disease,Gastoparesis,Small bowel Dismoltility, GERD, CVID-Common variable immune defficiency, Developmental delays, Sensory processing disorder,Speech Apraxia,Ashtma, hypotonia,auditory processing disorder and he has a gtube. He has IgA and IGg immune difficiency. He also has a porta cath in his chest. Jaygen has developmental delays as well as sensory issues.He is in OT,and Speech. Jaygen is homeschooled and is in the 3rd grade for 2021-22 school yr, with many accommodations for learning. Jaygen is a high maintenance 9 yr old (my oldest baby) but I wouldn't change him for the world..Jaygen's Mommy Jenny

Jaygen is followed by many doctors and specialist. We go to Vanderbilt Childrens Hospital every few months for Jaygen's GI specialist and Neurologist. Jaygen also travels to Mayo Clinic In Rochester MN for CDG. CDG-Type 1A was diagnosed a few yrs ago with genetic testing. Jaygen has insurance but they don't cover everything. Medical expenses for a special needs baby is expensive so any help is welcomed. Thank u for following and sharing our journey.

Let's get this over with..he is NOT IMPRESSED and very very anxious this morning He's had it basically his whole life, s...
09/02/2026

Let's get this over with..he is NOT IMPRESSED and very very anxious this morning
He's had it basically his whole life,
since 11m old... he's attached :)




06/08/2026

Updates have not been my strong suit these days. Jaygen is really growing up. 14yrs have flown by. He truly has grown so much and it's crazy to think how far he has came.

Hi all, Crazy to think Jaygen is almost 14. We don't post here quite as often as we used to but we are still here. It ha...
12/15/2025

Hi all, Crazy to think Jaygen is almost 14. We don't post here quite as often as we used to but we are still here. It has been a crazy year. Here is the boys Christmas list if anyone would like to send anything we would be forever grateful. This year has been a trying one for sure.
https://www.amazon.com/hz/wishlist/ls/2CGDJRLLJ1PWH?ref_=wl_share

Jaygen turns 13 on Thursday..crazy to think I will have a Teenager.. Here is his wishlist :) He also has a teen venmo at...
02/02/2025

Jaygen turns 13 on Thursday..crazy to think I will have a Teenager..
Here is his wishlist :)
He also has a teen venmo attached to mine


https://www.amazon.com/hz/wishlist/ls/MVKBVHCWJZY2?ref_=wl_share

He loves gift cards and to buy his own stuff lol đŸ˜† he made the Amazon list himself
Hes outgrowing all his clothes as well.

Endocrinologist for this one :)
01/30/2025

Endocrinologist for this one :)

Pulmonologist Brayden was not impressed it took us so long to get to actually sit down lol Jaygen 4 ft 9 73lbs 12.5 yrs...
08/08/2024

Pulmonologist
Brayden was not impressed it took us so long to get to actually sit down lol
Jaygen 4 ft 9 73lbs 12.5 yrs old
Brayden 4ft 53lbs 8yrs old

Port flush for this one
01/22/2024

Port flush for this one

Speech time
12/04/2023

Speech time

Dermatologist take 2
08/23/2023

Dermatologist take 2

Endocrinologist for the boys
07/27/2023

Endocrinologist for the boys

Address

2100 Clinch Ave Ste 140
Knoxville, TN
37916

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