24/01/2025
POST MESH REMOVAL UPDATE AND TREATMENT I HAVE HAD.
Hello Everyone I hope that all of you who have been affected by this disgusting mesh scandal are now getting the help you need. If I hadn't had a private removal in August 2019 I truly believe I would still be suffering or I would have tried to harm myself. If you are not familiar with my story the mesh broke through my va**na in late 2018 and I was sitting on sharp, hardened mesh!! No one in the NHS would/could help me as an emergency and I was in extreme agony as you can imagine. I was just given morphine, lots of it, which led to addiction issues. This is another side to my story and I will do a separate post on this.
Anyway this update is to help you get POST MESH REMOVAL help. It has taken 6 years but FINALLY I am getting help to deal with flooding. I had the MESH put in originally following a very difficult birth as my daughter weighed 9 1/2 pounds. This left me with awful incontinence. So I had the mesh put it in 2008 and it did solve my problems initially but unfortunately many mysterious symptoms started happening to me from 2012. some of the issues that I have mentioned earlier like unexplained pain, difficulty to function but it also included constant infections, cold sores, loss of teeth, pain, fatigue, depression, brain fog and sleeping 22 hours a day. I honestly wanted to die. I know now this is because the mesh started to break down and my immune system was in a terrible state trying to fight it. 
For the past six years after having my mesh removed in 2019 obviously the flooding returned. This was intolerable because I had to take a change of clothing wherever I went, and every time I stood up literally I would flood.
Finally, I got an appointment with gynaecology and they offered me at first simply medication for an overactive bladder. I insisted this wasn't sufficient as I'm not at the first stage of treatment. I'm at the final stage. I was finally offered a simple procedure which is Botox in my bladder which of course I jumped at.
I had this done on the 7th of January this year. It was under a local anaesthetic but in a real operating theatre, it was mildly uncomfortable. So far combined with the medication, I take two pills a day for an overactive bladder and the Botox has proved extremely effective. However, I had to fight for it, so FIGHT for anything you feel will help.
The product is called BULKAMID, see photos for full information. IT IS AVAILABLE ON THE NHS. I had mine via the NHS.
I will probably have to go for a top up in four weeks but it should last for a long time. It says it's a non-biodegradable implant with an expected lifetime of 80 years so hopefully this could be the answer.
So far I have leaked a little but nothing compared to before and if it stays like this, I could live like this. However, my journey started 21 years ago and it has been an awful journey filled with pain, suffering, depression and the urge to take my own life. It should not have been like this.
I send love and strength to all of you are still suffering and I hope this is useful to you.
As I have said before this page isn't constantly monitored as there are so many more groups out there that have a lot better information than I do. However I hope keeping my story updated. Will show you the journey that I've been on and may help yours. Cathy x